Specialized Information and Referral | National Organization for Rare Disorders

Connect persons with rare diseases with other patient assistance programs

Date of Last Formal Update

02/26/2024

Data provided by

211 DuPage County

Physical Address

7 Kenosia Avenue, Danbury, CT 06810

Hours

Monday to Thursday, 7:30 am - 6:00 pm Friday, 7:30 am - 5:00 pm

Voice

800-999-6673

Toll Free

Application process

Call (800) 469-0283 or email at [email protected] for assistance.

Fee

No fees

Eligibility

Persons with rare diseases and their caregivers

Languages

English, Spanish

Agency info

National Organization for Rare Disorders

Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.