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Specialized Information and Referral | National Organization for Rare Disorders

7 Kenosia Avenue, Danbury, CT 06810

Persons with rare diseases and their caregivers
None
Monday to Thursday, 9:30 am - 6:00 pm Friday, 9:30 am - 5:00 pm

English, Spanish; Interpreters for additional languages can be provided.

(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call for Spanish at 844-259-7178 for more information.

No fees

Description

Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.

Date of Last Formal Update

03/25/2025

Data provided by

211 DuPage County

Providing organization

National Organization for Rare Disorders

Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.

The information provided in the 211 Illinois Statewide Directory is based on self-reported data from listed organizations to approved 211 Service Providers across Illinois. The information provided was current at the time it was provided to 211 Illinois. 211 Illinois makes no endorsements, representations, or warranties of any kind regarding the information contained in the 211 Illinois Statewide Directory, the qualifications of any provider listed therein, or the services received from any provider listed. Use of the 211 Illinois Statewide Directory is at your own risk. 211 Illinois is not responsible for any loss or damage resulting from your use of the information contained in the 211 Illinois Statewide Directory, nor for the actions of any listed provider. If you have questions regarding the information contained in the 211 Illinois Statewide Directory or if you believe it to be outdated or inaccurate, please contact 211 Illinois at [email protected].