Specialized Information and Referral | National Organization for Rare Disorders
Connect persons with rare diseases with other patient assistance programs
Date of Last Formal Update
02/26/2024
Data provided by
211 DuPage County
Location
7 Kenosia Avenue, Danbury, CT 06810
Voice
Website
Hours
Monday to Thursday, 7:30 am - 6:00 pm Friday, 7:30 am - 5:00 pm
Application process
Call (800) 469-0283 or email at [email protected] for assistance.
Eligibility
Persons with rare diseases and their caregivers
Fee
No fees
Languages
English, Spanish
Agency info
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.