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Specialized Information and Referral | National Organization for Rare Disorders
Resource Name:Specialized Information and Referral | National Organization for Rare Disorders
address
7 Kenosia Avenue, Danbury, CT 06810
Eligibility
Persons with rare diseases and their caregivers
Required documents
None
Hours
Monday to Thursday, 7:30 am - 6:00 pm
Friday, 7:30 am - 5:00 pm
203-263-9938
Fax
·Fax
844-259-7178
Voice
·Spanish
203-616-4328
Voice
·Caregiver Respite Program
203-744-0100
Voice
·Main
800-999-6673
Voice
·Toll Free
Website
https://rarediseases.orgLanguages
English, Spanish; Interpreters for additional languages can be provided.
Application process
(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call for Spanish at 844-259-7178 for more information.
Fees
No fees
Service area
All ZIP Codes, All States
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Date of Last Formal Update
07/08/2026
Data provided by
211 DuPage County
What's Here
Providing organization
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.