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National Organization for Rare Disorders Patient Assistance Programs | National Organization for Rare Disorders

Eligibility

Call or email for information

Required documents

Varies by service

Hours

Mon-Thu 8:30 am-7 pm, Fri 8:30 am-6 pm EST
(800) 999-6673
Voice·

Toll-Free

(844) 259-7178
Voice·

Alternate Number

(800) 469-0283
Voice·

Main Phone

Application process

Visit website or call for information

Fees

None

Service area

United States

Offers patient assistance programs to help individuals obtain life-saving or life-sustaining medication that they may not otherwise be able to afford. These programs can provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultations with disease specialists.

An Information and Resource Services team is available to help navigate challenging questions.

Date of Last Formal Update

05/20/2026

Data provided by

United Way of the Midlands

Providing organization

National Organization for Rare Disorders

Provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford.

National Organization for Rare Disorders Patient Assistance Programs | National Organization for Rare Disorders