Respite Care Subsidies | National Organization for Rare Disorders

Financial assistance to enable caregivers to take a break from caregiving and attend a conference or event, or simply have an afternoon, or even time away from caregiving.

Date of Last Formal Update

03/25/2025

Data provided by

211 DuPage County

Physical Address

7 Kenosia Avenue, Danbury, CT 06810

Hours

Monday to Thursday, 9:30 am - 6:00 pm; Friday, 9:30 am - 5:00 pm

Voice

800-999-6673

Toll Free

Application process

(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call 844-259-7178 for help in Spanish.

Fee

No fees

Required documents

Photo ID; Proof of residence; Proof of income; Additional documentation may be required.

Eligibility

US citizen or permanent resident of the United States for at least 6 months with evidence of residency; Must meet income/financial guidelines; Provide care for an individual with a confirmed rare disease diagnosis.

Languages

English, Spanish; Interpreters for additional languages can be provided

Agency info

National Organization for Rare Disorders

Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.