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Respite Care Subsidies | National Organization for Rare Disorders
Resource Name:Respite Care Subsidies | National Organization for Rare Disorders
address
7 Kenosia Avenue, Danbury, CT 06810
Eligibility
US citizen or permanent resident of the United States for at least 6 months with evidence of residency; Must meet income/financial guidelines; Provide care for an individual with a confirmed rare disease diagnosis.
Required documents
Photo ID
Proof of residence
Proof of income
Additional documentation may be required.
Hours
Monday to Thursday, 7:30 am - 6:00 pm
Friday, 7:30 am - 5:00 pm
203-744-0100
Voice
·Main
844-259-7178
Voice
·Spanish
203-263-9938
Fax
·Fax
800-999-6673
Voice
·Toll Free
203-616-4328
Voice
·Caregiver Respite Program
Website
https://rarediseases.orgLanguages
English, Spanish; Interpreters for additional languages can be provided
Application process
(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call 844-259-7178 for help in Spanish.
Fees
No fees
Service area
All ZIP Codes, All States
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Date of Last Formal Update
07/08/2026
Data provided by
211 DuPage County
What's Here
Providing organization
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.