Respite Care Subsidies | National Organization for Rare Disorders

7 Kenosia Avenue, Danbury, CT 06810

Eligibility

US citizen or permanent resident of the United States for at least 6 months with evidence of residency; Must meet income/financial guidelines; Provide care for an individual with a confirmed rare disease diagnosis.

Required documents

Photo ID Proof of residence Proof of income Additional documentation may be required.

Hours

Monday to Thursday, 9:30 am - 6:00 pm Friday, 9:30 am - 5:00 pm

203-616-4328

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Caregiver Respite Program

844-259-7178

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Spanish

800-999-6673

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Toll Free

203-263-9938

Fax·

Fax

203-744-0100

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Main

Website

https://rarediseases.org

Languages

English, Spanish; Interpreters for additional languages can be provided

Application process

(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call 844-259-7178 for help in Spanish.

Fees

No fees

Service area

All ZIP Codes, All States

Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.

Date of Last Formal Update

03/25/2025

Data provided by

211 DuPage County

What's Here

Respite Care Subsidies

Providing organization

National Organization for Rare Disorders